Hidden Disability Advocate | Speaker | Author | Adventurer
I caught myself being bad again. This time I caught myself caring way too much what other people think. I’d been doing pretty well not caring about others’ opinions of me and my actions and choices, but more and more … Read More »
Of late I’ve heard myself calling the coronavirus pandemic the tempest. That is, the storm. And images have come to me about riding out a storm in a great ship. Of course I realized I was thinking of Noah’s ark. … Read More »
It’s a major drag to feel awful. Having to do it surrounded by people who have no idea what you’re suffering through, or who just don’t believe it’s real, is even worse. Try doing a nice thing for you and … Read More »
After ten hours at work, I came home and swept my porch. It was on my list. I had this idea when today began, as I said good morning to the transplants in the Gratitude Garden (that’s my back yard) … Read More »
With everything terrible happening due to the COVID-19 pandemic, including medical trauma, deaths, mourning, worrying, loss of livelihoods, lost of access to necessary services and items, strain on families, aggressive interpersonal encounters, missed life events, crushed dreams, and fear the … Read More »
#Amicasmells: The Movie Last year, my dog Amica and I wandered around the United States (mostly the wild west) for 10 weeks. There were plenty of reasons behind the trip, some I knew going in, and some I didn’t know … Read More »
I’m going to guess the majority of people have experienced significant changes in their lives due to the COVID-19 pandemic and its shutdowns. Some of these changes may be temporary (though we don’t know how long that is), and some … Read More »
Disability isn’t just about ability. I’ve been reflecting lately on my emotions about my chronic illness and chronic pain, because … well … I’ve been very emotional! I’m frustrated that life changes imposed by the pandemic shutdowns have been extremely … Read More »
Like this: “50 Things Since Fibro” or “19 Things Since COVID-19” I was feeling sorry for myself yesterday. I was feeling disabled. It happens sometimes because, you know, I have disabilities. It’s a terrible feeling and I wanted to kick … Read More »
I’ve written before about “passing” (see my suggested reads at the end of this article), what it’s like when we try to hide our symptoms or conditions, and this is something those of us with hidden or visible disabilities often … Read More »