Tag Archives: invisible disabilities

Finding a Comfy Spot on the Advocate-Activist Continuum

4 Sep
A close friend of mine has been making a lot of Instagram reels lately, all on the point of raising awareness for medically complex children and their parents, and for inspiring positive change in the medical community. I fondly realized...
Read more »

There is a “Yes” Inside You

26 Jul
Most mornings, as you may know, I journal per my little template that I created. Ahead of grabbing my pen, I do my morning reading, which is a book-surfing through a small stack of spiritual tomes. These range from Christian...
Read more »

My Chronic Illness Taught Me How to Grieve My Pet’s Death

17 Jun
On May 31st, with the help of a home-visit veterinarian service, my best friend and sole companion of nearly 14 years passed away. She was a retriever mix named Amica. I’m still grieving. I know I will continue to grieve,...
Read more »

Editing Memories

10 Jun
Last month, after April’s surprisingly successful jaunt together for business and pleasure in New England, I took my beloved nearly-14-year-old mutt on one more adventure, to visit the people I got her from as a puppy (who are also dear...
Read more »

My Fibromyalgia: The 5 Stages of Diagnosis and What Went Wrong in My Medical Care

7 May
It started with some tenderness in two or three knuckles. A couple days later, my hands were definitely hurting and my elbows were sore. A couple days after that, I felt it in my shoulders, too. Then suddenly, my whole...
Read more »

Advance Information Checklist for People with Disabilities and Their Allies

24 Apr
One thing I love when I’m doing a presentation on disabilities is experiencing the volume of human kindness. There is always an atmosphere of “how can I help?” and this yields great questions during the Q&A portion at the end...
Read more »

4 Ways I Do It Anyway (When Pain and Fatigue Conspire Against Me)

20 Mar
Oh, springtime …. I’m seeing green of my lilies starting to reach out of the ground. Daily I marvel at the new growth on the rosebush I planted last year. And the weather is … all over the place. So...
Read more »