Hidden Disability Advocate | Speaker | Author | Adventurer
Today is a loss. There’s absolutely nothing I can do about that. I’m having yet another stormy summer flare, and there’s nothing I can do to feel less miserable. It’s days like these when even small comforts aren’t comforting, and … Read More »
Folks who live with “moving target” conditions–that is, conditions that are inconsistent from one day to the next–are often subject to triggers. Triggers are events that initiate or worsen symptoms. They can be sensory triggers, which are experienced as sight, … Read More »
Last week, I wrote an article about appointment fatigue, the multitude of reasons I’m just so over all this medical stuff I’m doing lately (check it out here if you missed it), and now I want to share some big … Read More »
Using “P.O.U.R.,” here’s how to improve accessibility of your websites and web apps, mobile apps, digital documents such as PDFs and Word documents, online course materials, and social media posts. (Below the POUR list, I’ve got a simpler “checklist” for … Read More »
I’m over it, but it’s not over. For years, I’ve resisted medical appointments, having utterly lost hope that physicians can do anything to help me. A lot of it stems from how terrible my experience was in getting diagnosed with … Read More »
I’ve had quite a rough run with my chronic illnesses these past several months. Really, it’s been building up over two-and-a-half years, since I got COVID. Now, I’m finally making some headway. With help from medical professionals, I’m finally starting … Read More »
This week, I was presenting yet again at SUNY Cobleskill. I do something a little different each time, and this time I did my “Self Care and Time Management for Folks with Hidden Disabilities” presentation for incoming new students utilizing … Read More »
In the journey of invisible illnesses and mental health, we get assigned words. The words are diagnoses. Diagnoses can be powerful blessings. They are a pathway to understanding, to treatment, to community, to validation. But they may also hold devastations … Read More »
I love discovering words or phrases or even inventing words of phrases in order to simplify communication. I find it particularly important when talking about invisible disabilities, even more so when it’s a “taboo” topic that people already avoid talking … Read More »
On one of my worst days this week, I dumped a scoop of cat food into the bowl I keep on my back porch. Hearing the clank of all the crunchy little pieces against the stainless steel, I felt valuable. … Read More »