My Fibromyalgia: The 5 Stages of Diagnosis and What Went Wrong in My Medical Care

7 May
It started with some tenderness in two or three knuckles. A couple days later, my hands were definitely hurting and my elbows were sore. A couple days after that, I felt it in my shoulders, too. Then suddenly, my whole...
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Advance Information Checklist for People with Disabilities and Their Allies

24 Apr
One thing I love when I’m doing a presentation on disabilities is experiencing the volume of human kindness. There is always an atmosphere of “how can I help?” and this yields great questions during the Q&A portion at the end...
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4 Ways I Do It Anyway (When Pain and Fatigue Conspire Against Me)

20 Mar
Oh, springtime …. I’m seeing green of my lilies starting to reach out of the ground. Daily I marvel at the new growth on the rosebush I planted last year. And the weather is … all over the place. So...
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Children’s Coloring Book About Invisible Disabilities

13 Mar
Last year, a high school student contacted me through my website after she Googled invisible disabilities. She is a Girl Scout, and she told me she was working towards her Gold Award, which is the highest award and equal to...
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How to Tell People About an Invisible Disability

12 Feb
This came up as a question from a student when I was presenting at a university last fall. The student was recently diagnosed with a cognitive condition and asked me, “How do I tell people about it?” I happen to...
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Talking Sh*t (why we should!)

21 Jan
Did you know I hold an elected government office? I’m a Council member in my tiny old suburb near Harrisburg, Pennsylvania. Earlier this month, we were discussing parking spaces in town for people with disabilities. I won’t go into that...
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Invisible Disabilities and LEGO

11 Jan
I love LEGO®, and LEGO helps me love myself. Here’s how it happened. LEGO bricks were my favorite childhood toy. When I was in middle school, they existed in secret. It was the early 90s, and I was getting teenager...
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10 Travel Tips from the Disabled Duo

12 Nov
We love adventure, my old lady dog and I. This is most likely our last big one. You should see us in the mornings! I’m all sore and stiff with my arthritis and foggy from my fibro. She’s morning-delirious and...
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