When I Play Favorites with My Chronic Conditions

30 May
This week it occurred to me that I play favorites with my chronic health conditions. What I mean is, I most often identify as someone with fibromyalgia and downplay my other conditions. Today, I decided I’d write about it, not...
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11 Pandemic Trends People with Disabilities Want to Keep

13 May
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In my home state of Pennsylvania, signs of the COVID-19 pandemic are finally fading away. Governor Wolf has lifted many of the restrictions, such as capacity limits in businesses and no seating at bars, meanwhile promising to lift the mask...
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Why Asking “How can I help?” is Problematic (and Tips to Rephrase)

23 Apr
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“Is there anything I can do?” It’s a common question from caring people. We ask it when someone is stressed. We ask when someone is grieving. The caring people in my life ask when one of my chronic conditions is...
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Combating the Myth of Endings

9 Apr
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One of my struggles has always been the evening appointment. I remember when I was a waitress and worked evenings, it was hard for me to be productive and enjoy the day because I had this thing to do later,...
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4 Things People with Disabilities Find Helpful When We’re “Out in the World”

20 Mar
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One of my speaking programs on disability has a strong focus on universal design, which is defined as making spaces, objects, and experiences accessible to all people regardless of disability or other difference. Yes, this means having ramps, but much,...
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11 Things I Do at Bedtime That Make Life a Little Better

22 Jan
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I love preparing ahead for myself. Doing those little (or big) things that might make a future moment better. (It’s why I keep up my Splatquake kit.) So doing little things for my tomorrows has become part of my bedtime...
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Mantra Checkpoints for Impossible Days

6 Dec
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I do love using the Splat system and the Impact Map to help manage self-expectations and to lighten the load, when I’m having my worse days, without all the guilt. But there are plenty of times in life when adulting...
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Creatively Overcoming Mental Health Effects of Chronic Pain (or whatever may be attacking your mental health)

12 Nov
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Chronic pain doesn’t just literally hurt. It takes a toll on our mental health as well. Some of the ways it affects *my* mental health are: One of my chronic pain conditions (fibromyalgia) actually has mental health symptoms! These include...
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