Hidden Disability Advocate | Speaker | Author | Adventurer
This afternoon, an apostrophe made me cry. OK, context. My fibromyalgia is in full flare today. Extreme fatigue, brain fog, body aches, plus the mental health symptoms: anxiety and depression. I have a ton of work to get done in … Read More »
I recently talked to someone who questioned whether she was “disabled enough” to identify as disabled. She said she had a “mild” version of her condition and hesitated to even talk about it. I really related to this, because sometimes … Read More »
This week it occurred to me that I play favorites with my chronic health conditions. What I mean is, I most often identify as someone with fibromyalgia and downplay my other conditions. Today, I decided I’d write about it, not … Read More »
Last year, I shared my list-based daily journaling technique that really helped me connect with joy, hope, and resolve during some tough times. Well, I’ve kept it up, and it’s evolved! I think it’s a lot better now, and I … Read More »
In my home state of Pennsylvania, signs of the COVID-19 pandemic are finally fading away. Governor Wolf has lifted many of the restrictions, such as capacity limits in businesses and no seating at bars, meanwhile promising to lift the mask … Read More »
“Is there anything I can do?” It’s a common question from caring people. We ask it when someone is stressed. We ask when someone is grieving. The caring people in my life ask when one of my chronic conditions is … Read More »
One of my struggles has always been the evening appointment. I remember when I was a waitress and worked evenings, it was hard for me to be productive and enjoy the day because I had this thing to do later, … Read More »
One of my speaking programs on disability has a strong focus on universal design, which is defined as making spaces, objects, and experiences accessible to all people regardless of disability or other difference. Yes, this means having ramps, but much, … Read More »
It was quite a journey of thought, which I won’t bore (or frighten) you with, but I’ll tell you where I landed. I decided to make a piggy bank of sorts, filled with ways to reset a moment when I … Read More »
I love preparing ahead for myself. Doing those little (or big) things that might make a future moment better. (It’s why I keep up my Splatquake kit.) So doing little things for my tomorrows has become part of my bedtime … Read More »