What’s a “Loo Desert”?

4 May
a tan portable toilet with the words "got poop?" on its side sitting roadside with mountain terrain behind it
I love discovering words or phrases or even inventing words of phrases in order to simplify communication. I find it particularly important when talking about invisible disabilities, even more so when it’s a “taboo” topic that people already avoid talking...
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Documinitary: 4-Campus Speaking Tour in New York

12 Apr
I finally made another little movie! This was the first week of February, 2024, when I spoke at Cayuga Community College’s Auburn and Fulton campuses, as well as Onondaga Community College and State University of New York Morrisville. Here you...
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The Dark Side of Adventure

23 Mar
How I Lost My Ability to “Pass” and What Happens When People Make Assumptions Five years ago, when I published my first article on The Mighty (featuring my Splat system for communicating about chronic physical and mental health conditions), a...
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There is a “Yes” Inside You

26 Jul
Most mornings, as you may know, I journal per my little template that I created. Ahead of grabbing my pen, I do my morning reading, which is a book-surfing through a small stack of spiritual tomes. These range from Christian...
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My Fibromyalgia: The 5 Stages of Diagnosis and What Went Wrong in My Medical Care

7 May
It started with some tenderness in two or three knuckles. A couple days later, my hands were definitely hurting and my elbows were sore. A couple days after that, I felt it in my shoulders, too. Then suddenly, my whole...
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Advance Information Checklist for People with Disabilities and Their Allies

24 Apr
One thing I love when I’m doing a presentation on disabilities is experiencing the volume of human kindness. There is always an atmosphere of “how can I help?” and this yields great questions during the Q&A portion at the end...
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