What’s a “Loo Desert”?

4 May
a tan portable toilet with the words "got poop?" on its side sitting roadside with mountain terrain behind it

I love discovering words or phrases or even inventing words of phrases in order to simplify communication. I find it particularly important when talking about invisible disabilities, even more so when it’s a “taboo” topic that people already avoid talking … Read More »

Documinitary: 4-Campus Speaking Tour in New York

12 Apr

I finally made another little movie! This was the first week of February, 2024, when I spoke at Cayuga Community College’s Auburn and Fulton campuses, as well as Onondaga Community College and State University of New York Morrisville. Here you … Read More »

The Dark Side of Adventure

23 Mar

How I Lost My Ability to “Pass” and What Happens When People Make Assumptions Five years ago, when I published my first article on The Mighty (featuring my Splat system for communicating about chronic physical and mental health conditions), a … Read More »

There is a “Yes” Inside You

26 Jul

Most mornings, as you may know, I journal per my little template that I created. Ahead of grabbing my pen, I do my morning reading, which is a book-surfing through a small stack of spiritual tomes. These range from Christian … Read More »

My Fibromyalgia: The 5 Stages of Diagnosis and What Went Wrong in My Medical Care

7 May

It started with some tenderness in two or three knuckles. A couple days later, my hands were definitely hurting and my elbows were sore. A couple days after that, I felt it in my shoulders, too. Then suddenly, my whole … Read More »

Advance Information Checklist for People with Disabilities and Their Allies

24 Apr

One thing I love when I’m doing a presentation on disabilities is experiencing the volume of human kindness. There is always an atmosphere of “how can I help?” and this yields great questions during the Q&A portion at the end … Read More »