My Fibromyalgia: The 5 Stages of Diagnosis and What Went Wrong in My Medical Care

7 May
It started with some tenderness in two or three knuckles. A couple days later, my hands were definitely hurting and my elbows were sore. A couple days after that, I felt it in my shoulders, too. Then suddenly, my whole...
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Advance Information Checklist for People with Disabilities and Their Allies

24 Apr
One thing I love when I’m doing a presentation on disabilities is experiencing the volume of human kindness. There is always an atmosphere of “how can I help?” and this yields great questions during the Q&A portion at the end...
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4 Ways I Do It Anyway (When Pain and Fatigue Conspire Against Me)

20 Mar
Oh, springtime …. I’m seeing green of my lilies starting to reach out of the ground. Daily I marvel at the new growth on the rosebush I planted last year. And the weather is … all over the place. So...
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10 Travel Tips from the Disabled Duo

12 Nov
We love adventure, my old lady dog and I. This is most likely our last big one. You should see us in the mornings! I’m all sore and stiff with my arthritis and foggy from my fibro. She’s morning-delirious and...
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“Usual” Does Not Make It “OK”

17 Jun
I’ve had a bad stretch of bad days lately. One of my very least favorite symptoms of my chronic conditions, extreme stomach bloating, has had an excessive tenure this month. In addition, my fibromyalgia has been super active. Last weekend,...
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