My 12 Hacks for Attending a Professional Conference While Living with Invisible Disability

1 Aug
I avoid in-person trainings and especially conferences, because my chronic conditions make them quite uncomfortable and even agonizingly painful. I live with fibromyalgia and chronic fatigue syndrome, osteoarthritis and degenerative disc disease (with one terrible herniated disc named Larry), and...
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Documinitary: 4-Campus Speaking Tour in New York

12 Apr
I finally made another little movie! This was the first week of February, 2024, when I spoke at Cayuga Community College’s Auburn and Fulton campuses, as well as Onondaga Community College and State University of New York Morrisville. Here you...
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My Fibromyalgia: The 5 Stages of Diagnosis and What Went Wrong in My Medical Care

7 May
It started with some tenderness in two or three knuckles. A couple days later, my hands were definitely hurting and my elbows were sore. A couple days after that, I felt it in my shoulders, too. Then suddenly, my whole...
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When I Play Favorites with My Chronic Conditions

30 May
This week it occurred to me that I play favorites with my chronic health conditions. What I mean is, I most often identify as someone with fibromyalgia and downplay my other conditions. Today, I decided I’d write about it, not...
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11 Pandemic Trends People with Disabilities Want to Keep

13 May
In my home state of Pennsylvania, signs of the COVID-19 pandemic are finally fading away. Governor Wolf has lifted many of the restrictions, such as capacity limits in businesses and no seating at bars, meanwhile promising to lift the mask...
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7 Things to Be Aware of Regarding Fibro and CFS

16 May
May is fibromyalgia and chronic fatigue awareness month. I have both these diagnoses and here are a few things I’d like to make people “aware” about them: Fibromyalgia and chronic fatigue syndrome are real. Fibromyalgia is way more than just...
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