One thing I love when I’m doing a presentation on disabilities is experiencing the volume of human kindness. There is always an atmosphere of “how can I help?” and this yields great questions during the Q&A portion at the end... Read more »
This came up as a question from a student when I was presenting at a university last fall. The student was recently diagnosed with a cognitive condition and asked me, “How do I tell people about it?” I happen to... Read more »
“Is there anything I can do?” It’s a common question from caring people. We ask it when someone is stressed. We ask when someone is grieving. The caring people in my life ask when one of my chronic conditions is... Read more »
“What do you take for that?” It’s the most common question people ask me when I tell them I have fibromyalgia. It’s fascinating that this go-to is treatment-centric. In fact, a lot of conversation around my condition, with people who... Read more »
The Spoon Theory came about in 2003 to describe life with a chronic illness. The spoons represent measures of energy that one has, and they are “used up” as one performs tasks. Different tasks use different amounts of spoons. Once... Read more »
