Tag Archives: IBSd

What’s a “Loo Desert”?

4 May
a tan portable toilet with the words "got poop?" on its side sitting roadside with mountain terrain behind it
I love discovering words or phrases or even inventing words of phrases in order to simplify communication. I find it particularly important when talking about invisible disabilities, even more so when it’s a “taboo” topic that people already avoid talking...
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My 12 Hacks for Attending a Professional Conference While Living with Invisible Disability

1 Aug
I avoid in-person trainings and especially conferences, because my chronic conditions make them quite uncomfortable and even agonizingly painful. I live with fibromyalgia and chronic fatigue syndrome, osteoarthritis and degenerative disc disease (with one terrible herniated disc named Larry), and...
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The Dark Side of Adventure

23 Mar
How I Lost My Ability to “Pass” and What Happens When People Make Assumptions Five years ago, when I published my first article on The Mighty (featuring my Splat system for communicating about chronic physical and mental health conditions), a...
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