Hidden Disability Advocate | Speaker | Author | Adventurer
It’s something you hear about. In fact, I had the condition for years before I knew it had a name. It’s not exactly official. You won’t find it on the Center for Disease Control’s (CDC’s) website or even WebMD. But … Read More »
One of my speaking programs on disability has a strong focus on universal design, which is defined as making spaces, objects, and experiences accessible to all people regardless of disability or other difference. Yes, this means having ramps, but much, … Read More »
“What do you take for that?” It’s the most common question people ask me when I tell them I have fibromyalgia. It’s fascinating that this go-to is treatment-centric. In fact, a lot of conversation around my condition, with people who … Read More »
I can’t blame it all on fibromyalgia. My printer had its share of guilt. And of course COVID. The snowstorm wasn’t innocent. Yet wherever the blame may go, it was I who was mortified. Last Thursday evening, the municipal authority … Read More »
It was quite a journey of thought, which I won’t bore (or frighten) you with, but I’ll tell you where I landed. I decided to make a piggy bank of sorts, filled with ways to reset a moment when I … Read More »
I love preparing ahead for myself. Doing those little (or big) things that might make a future moment better. (It’s why I keep up my Splatquake kit.) So doing little things for my tomorrows has become part of my bedtime … Read More »
I do love using the Splat system and the Impact Map to help manage self-expectations and to lighten the load, when I’m having my worse days, without all the guilt. But there are plenty of times in life when adulting … Read More »
Chronic pain doesn’t just literally hurt. It takes a toll on our mental health as well. Some of the ways it affects *my* mental health are: One of my chronic pain conditions (fibromyalgia) actually has mental health symptoms! These include … Read More »
Last weekend, Amica and I traveled to a friend’s hunting camp in Pennsylvania’s Moshannon State Forest. During the day, I took him and his dog to a little winery I love: Elk Mountain Winery. We ordered our tasting and chose … Read More »
I started a new routine and I really like it! I started keeping a journal that’s been really easy and helps me stay focused and positive. I take about five minutes (or less) each morning on it, and spend a … Read More »