“Usual” Does Not Make It “OK”

17 Jun
I’ve had a bad stretch of bad days lately. One of my very least favorite symptoms of my chronic conditions, extreme stomach bloating, has had an excessive tenure this month. In addition, my fibromyalgia has been super active. Last weekend,...
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Why Asking “How can I help?” is Problematic (and Tips to Rephrase)

23 Apr
“Is there anything I can do?” It’s a common question from caring people. We ask it when someone is stressed. We ask when someone is grieving. The caring people in my life ask when one of my chronic conditions is...
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Combating the Myth of Endings

9 Apr
One of my struggles has always been the evening appointment. I remember when I was a waitress and worked evenings, it was hard for me to be productive and enjoy the day because I had this thing to do later,...
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I Have a Sitting Disability: What That Means

26 Mar
It’s something you hear about. In fact, I had the condition for years before I knew it had a name. It’s not exactly official. You won’t find it on the Center for Disease Control’s (CDC’s) website or even WebMD. But...
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4 Things People with Disabilities Find Helpful When We’re “Out in the World”

20 Mar
One of my speaking programs on disability has a strong focus on universal design, which is defined as making spaces, objects, and experiences accessible to all people regardless of disability or other difference. Yes, this means having ramps, but much,...
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