Editing Memories

10 Jun
Last month, after April’s surprisingly successful jaunt together for business and pleasure in New England, I took my beloved nearly-14-year-old mutt on one more adventure, to visit the people I got her from as a puppy (who are also dear...
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My Fibromyalgia: The 5 Stages of Diagnosis and What Went Wrong in My Medical Care

7 May
It started with some tenderness in two or three knuckles. A couple days later, my hands were definitely hurting and my elbows were sore. A couple days after that, I felt it in my shoulders, too. Then suddenly, my whole...
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Advance Information Checklist for People with Disabilities and Their Allies

24 Apr
One thing I love when I’m doing a presentation on disabilities is experiencing the volume of human kindness. There is always an atmosphere of “how can I help?” and this yields great questions during the Q&A portion at the end...
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4 Ways I Do It Anyway (When Pain and Fatigue Conspire Against Me)

20 Mar
Oh, springtime …. I’m seeing green of my lilies starting to reach out of the ground. Daily I marvel at the new growth on the rosebush I planted last year. And the weather is … all over the place. So...
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Children’s Coloring Book About Invisible Disabilities

13 Mar
Last year, a high school student contacted me through my website after she Googled invisible disabilities. She is a Girl Scout, and she told me she was working towards her Gold Award, which is the highest award and equal to...
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How to Tell People About an Invisible Disability

12 Feb
This came up as a question from a student when I was presenting at a university last fall. The student was recently diagnosed with a cognitive condition and asked me, “How do I tell people about it?” I happen to...
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Invisible Disabilities and LEGO

11 Jan
I love LEGO®, and LEGO helps me love myself. Here’s how it happened. LEGO bricks were my favorite childhood toy. When I was in middle school, they existed in secret. It was the early 90s, and I was getting teenager...
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