Tag Archives: chronic illness

Art with Disability

8 Nov

My touring has mostly wound down for the season and I’ve been awarding myself a lot more time to do one of my favorite things: writing. I’m working on Splatvocate (the next Splat book, this time for advocates), but I’m … Read More »

A Day in the Food Of (and other reflections on intuition and self-care)

1 Nov

Monday, I had pizza. I had it for lunch, and then I had it for second lunch. It was so good and made my taste buds so happy. My stomach had entirely different feelings about it. By the end of … Read More »

What “Passing” Means to a Disabled Person

24 Oct

My busy season has yielded some great ideas. More than ever, I’m actively revising and tweaking my presentations before each college visit. These changes come out of things like Q&A sessions, special advance requests, ad libs while I’m speaking … … Read More »

8 Ideas to Amplify Healing

13 Sep

I finally turned a corner towards improvement again, and this time without steroids. As I tapered off my course of prednisone, the pain of my herniated disc became worse every day. Things I’d started to get back were lost again, … Read More »

What is “Illness Shaming”? … and How to Knock It Off

6 Sep

I want to talk about stigma. When I do my presentations, I actually come out and outright reject the word stigma, because the actual definition is something like, “a mark of disgrace.” Yeah, that this someone has an actual mark … Read More »

Refresh Your Hardships with a “First Day of School”

30 Aug

Remember the thrill of the first day of school? That new beginning? I won’t assume this was a positive experience for everyone, but for a lot of us, it was an exciting time. A clean slate, a fresh start. I … Read More »

When I Have Zero Bandwidth for Other People’s Problems

22 Aug

So your boss is being a jerk again. You had a fight with your girlfriend. Your new alternator is going to cost $300. Sorry, but today, I don’t care. I just can’t. Not because *I’m* a jerk. But because I … Read More »