What Chronic Illness Taught Me About “Uncertain Times”

14 Mar

Here’s the thing about not having a diagnosis: It’s very challenging to move forward. I couldn’t get a clear treatment plan, because we didn’t know what we were treating. I couldn’t explain to friends and coworkers what was going on, because I didn’t know myself. I couldn’t connect with other people who were sharing my experience because I didn’t know who they were. And maybe most importantly, I couldn’t properly grieve. Because I didn’t know what I was grieving.

My 12 Hacks for Attending a Professional Conference While Living with Invisible Disability

1 Aug

I avoid in-person trainings and especially conferences, because my chronic conditions make them quite uncomfortable and even agonizingly painful. I live with fibromyalgia and chronic fatigue syndrome, osteoarthritis and degenerative disc disease (with one terrible herniated disc named Larry), and … Read More »

Middle-Aged, Disabled, and Still Playing with Toys

30 Jun

I have a joyful building toy hobby, which has now inspired a new YouTube channel @ConstruxtiveChris featuring a favorite toy from my childhood, Fisher-Price Construx. This channel has nothing to do with my speaking business or my Splat books. It’s … Read More »

17 Reasons Folks with Hidden Disabilities are Assets in the Workplace

24 May

I am so thrilled to have my own business and all the flexibility that comes from being self-employed. I’ve managed to become an entrepreneur both despite and because of my hidden disabilities, which are: osteoarthritis, degenerative disc disease (with a … Read More »

Documinitary: 4-Campus Speaking Tour in New York

12 Apr

I finally made another little movie! This was the first week of February, 2024, when I spoke at Cayuga Community College’s Auburn and Fulton campuses, as well as Onondaga Community College and State University of New York Morrisville. Here you … Read More »

The Dark Side of Adventure

23 Mar

How I Lost My Ability to “Pass” and What Happens When People Make Assumptions Five years ago, when I published my first article on The Mighty (featuring my Splat system for communicating about chronic physical and mental health conditions), a … Read More »

What Grown-Ups Need to Learn from These Ableist Toy Reviews

7 Oct

trigger warning: insensitive statements about people with disabilities You know I love LEGO®, so we don’t expect me to be getting big mad during one of my frequent scrolls on LEGO.com, but it happened. It of course wasn’t anything my … Read More »