The 4 Tiers of Triggers

20 Oct

Folks who live with “moving target” conditions–that is, conditions that are inconsistent from one day to the next–are often subject to triggers. Triggers are events that initiate or worsen symptoms. They can be sensory triggers, which are experienced as sight, … Read More »

How to Implement Digital Accessibility (and Title II)

13 Oct

Using “P.O.U.R.,” here’s how to improve accessibility of your websites and web apps, mobile apps, digital documents such as PDFs and Word documents, online course materials, and social media posts. (Below the POUR list, I’ve got a simpler “checklist” for … Read More »

The Toll of “Appointment Fatigue”

11 Oct

I’m over it, but it’s not over. For years, I’ve resisted medical appointments, having utterly lost hope that physicians can do anything to help me. A lot of it stems from how terrible my experience was in getting diagnosed with … Read More »

Facing Social and Work Lives After an Extended Flare

29 Sep

I’ve had quite a rough run with my chronic illnesses these past several months. Really, it’s been building up over two-and-a-half years, since I got COVID. Now, I’m finally making some headway. With help from medical professionals, I’m finally starting … Read More »

Forgetting Stigma & Picking Dandelions

22 May

In the journey of invisible illnesses and mental health, we get assigned words. The words are diagnoses. Diagnoses can be powerful blessings. They are a pathway to understanding, to treatment, to community, to validation. But they may also hold devastations … Read More »

What’s a “Loo Desert”?

4 May
a tan portable toilet with the words "got poop?" on its side sitting roadside with mountain terrain behind it

I love discovering words or phrases or even inventing words of phrases in order to simplify communication. I find it particularly important when talking about invisible disabilities, even more so when it’s a “taboo” topic that people already avoid talking … Read More »

“Feed Your Porch Cats” is a Positive Mindset in the Toughest of Times

18 Apr

On one of my worst days this week, I dumped a scoop of cat food into the bowl I keep on my back porch. Hearing the clank of all the crunchy little pieces against the stainless steel, I felt valuable. … Read More »

Ideas & Guidance for Disclosing Disability in the Workplace

20 Mar

For a yet-to-be-published episode of Hidden Disability Conversation (check out our HiddenDisabilityConversation.com YouTube channel), my partner, Wendi created this helpful one-sheet guide for disclosing disability in the workplace. I’ll include the content below, but you can also DOWNLOAD .DOCX HERE … Read More »