4 Ways I Do It Anyway (When Pain and Fatigue Conspire Against Me)

20 Mar

Oh, springtime …. I’m seeing green of my lilies starting to reach out of the ground. Daily I marvel at the new growth on the rosebush I planted last year. And the weather is … all over the place. So … Read More »

How to Tell People About an Invisible Disability

12 Feb

This came up as a question from a student when I was presenting at a university last fall. The student was recently diagnosed with a cognitive condition and asked me, “How do I tell people about it?” I happen to … Read More »

Invisible Disabilities and LEGO

11 Jan

I love LEGO®, and LEGO helps me love myself. Here’s how it happened. LEGO bricks were my favorite childhood toy. When I was in middle school, they existed in secret. It was the early 90s, and I was getting teenager … Read More »

Invisible vs. Hidden: What to Call Our Disabilities?

4 Dec

A couple times in the past month, I’ve had conversation about the term “invisible disabilities” versus “hidden disabilities.” Which one do I use and why? Are they the same? I first used “invisible disability” because that’s the first way I … Read More »

The Sag Wagon Advantage

27 Aug

Earlier this month, I attended a bicycle ride event for charity in Iowa. It’s an event a friend of mine puts on and I’ve seen the pictures on Facebook every year and decided this time I was going to go, … Read More »

When an Apostrophe Made Me Cry, and How I Made It OK

14 Aug

This afternoon, an apostrophe made me cry. OK, context. My fibromyalgia is in full flare today. Extreme fatigue, brain fog, body aches, plus the mental health symptoms: anxiety and depression. I have a ton of work to get done in … Read More »

On Mattresses and How I Hurt Myself

6 Aug

Mattresses tell the tale of a thing I do wrong a lot. Amica and I are traveling again, and our first night was a marvelous stay in a National Forest where I slept on my comfy air mattress. That air … Read More »